Well after the Occipital Nerve blocks my Neurologist also gave me a TMJ nerve block on both right and left sides and a temporal nerve block on my left. I felt human again, the buzzing in my ears lessened and no headaches for 2 months. I felt so much better other than the fatigue I felt cured. I had my sleep study and the results showed severe Excessive Daytime Sleepiness. During the Latency test the longest time it took me to fall asleep was 4:27 minutes. My Sleep dr. wanted me on treatment ASAP, the results were 1 of 2 things, Narcolepsy or Idiopathic Hypersomnia. After seeing my PCP and 2 Neurologists that all refused to treat me, I am again falling through the cracks, and getting nowhere, just when I thought I was. I am just so tired! Most days I sleep between 10-12 hours, other days I sleep 7-8, but if I am even slightly sick we are talking about 16 + hours easy. Today is a 16 + hours, my allergies are wreaking havoc, luckily I don't have weakness, but the fatigue and brain fog is crippling. I am taking a break from doctors for a while, I just need reevaluate this whole thing and slow down. My family life, marriage, and sanity have been stretched to their limits. I thought I was holding up better than can be expected, I wasn't going to let this thing get to me, but I have just been so broken down by this process, that I want to give up. I know I can't, and I have been down here and there along the way, but this time its worse. I refuse to see another doctor to have him tell me I am depressed, no shit! You wonder why? The good news I have a Sleep Disorder (no one will touch), so screw it no prescription, coffee intravenous it is. No driving long distances by myself and taking naps that is what I have been doing. Lack of independence, relying on others this is what my life has succumbed to, Buck Up Girl, get over it! It sucks, no support, but answers, I just don't get it. Really I don't.
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