I have been waiting for answers from the doctors to no end. So I have taken it upon myself to do what I can do. I researched gluten, and easier to digest alternatives and Sour Dough has come up over and over again. So I took a closer look.
I made a starter dough and it worked, I tried 2 recipes for bread, and buttermilk sourdough waffles, that were all very good. With Sourdough the yeast and good bacteria break down the gluten and make it easier to digest. The fermentation process removes phytates and enzyme inhibitors. There are a lot more great reasons to make sour dough, but the internet is filled with great information on this subject. I wanted to get the nutrition from what I was putting into my mouth instead of it pulling nutrients away from me.
I was so psyched to find this information out. I jumped right on and even made a loaf of bread that took me 10 days, which in truth was really frustrating!!!! But they all turned out perfectly. My kids loved them, and so did I, which is awesome. Plus there is something about making bread that make me feel like I am doing something good for my family.
Well this was lovely! Everyone was happy, great bread, blah blah blah! The weakness I was experiencing was continually getting worse everyday. I thought to myself if this continues I don’t know how I am going to make it through the week luckily I had an appointment with my Neurologist coming up, and he would finally see a “bad day” for a change.
I went to my Neurologist for my 4 week check up. He gave me the results of the skin biopsy, I have…. wow really, I have been saying the term for two months and now it goes from my mind! Holy Crap I am going to have Google it, it really isn’t coming to me. I have Small Fiber Neuropathy in my calf, but my thigh is normal. He then tells me my blood work that I had done 4-6 weeks ago shows that I am Vitamin B-12 deficient and that my ANA tests are still elevated. (In truth I had no clue to what he was talking about, I don’t remember getting blood work done recently, unless it was from the ER in January. How confusing.) He checked over my chart and wanted to discuss my abdominal problems, he told me that I needed to go 100% Gluten Free, to see if the the B-12 deficiency was stemming from there. I asked him if there are any treatments for Small Fiber Neuropathy and he said the damage is permanent, there is no way to reverse it. But if Gluten is causing my problems then removing it from my diet would stop more damage from happening. I asked if there was enough evidence to diagnose me with an autoimmune disorder and he said that there still wasn’t. I did get a Vitamin B12 shot and I scheduled an appointment to see him again next month.
This of course is huge for me, but in truth it was just crumbs. I have something , but really nothing still. My ANA results have been elevated for 6 months or more now, no shock there, but on their own, without other evidence, they mean nothing. With this other evidence I was hoping for a clear path to take. Yes I will go Gluten Free, and yes it would be nice to stop the damage that my body does to itself from happening, but at this point I just have little hope that it will prove anything. I am still so frustrated with this Limbo state of mind.
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